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 Posted: Thu Jun 14, 2007 5:07 pm
((x-posted to a few places, and when I'm untired enough, I'll sting out a long emo rant in my LJ))
((main point is bolded))
rolleyes
I know there are other places I could post, forums for those affected, but I feel comfier here, and I'm a woman of pride. Or was. I've lost the vast majority over recent months. And I don't want any damn pity; I can go to Priests for that.
Recently, my illness is getting worse. Probably due to exam stress, my myalgia's reaching all new levels (which means I hurt a heck of a lot), and my ME forbids painkillers, or anything else, from working properly. This has all impacted on my emotional health, and on my mental ability. If of course there ever was any.
In brief, ME and FM are pains in the....actually, everywhere omitting my neck, and I've also developed swollen tendons. I can barely write (even ergonomic eqipment is difficult and painful), and I walk with a stick for most of the day. Albeit an incredibly sexy stick. With polka dots.
whee
It's better than NHS grey, anyway.
So, this all stresses me out anyway, and if I don't get better, my childhood dreams of doctor in a Harrier are out the window. Thus, I am a little emtionally upper-height.
And then, today, someone I previously regarded as a respectful person, told me there was nothing wrong with me, asked why I used the stick, and critised my use of a scribe in my exams.
Correct me if I'm being a fool, but is there anything more betraying you can say to someone who spends every second of their life in agony and in need of sleep?
Obviously, I can understand - you can't see ME. Nor can you see AIDS or the onset of cardic arrest. While I'm lucky in not suffering in that way, just because they're not obvious doesn't mean they don't debilitate. But while I understand all that, what do I say, as a Christian, to someone who tells me I'm not ill? How can I not be rude, but still get it to at least penetrate their eardrums that such comments are not helpful?
Sorry for the ranting.
Tell me I'm fine and I know where you live.
wink
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Posted: Fri Jun 15, 2007 3:20 am
This misunderstanding must be very hard for you... (Is it allowed to pity you for your surroundings? wink )
Okay Chronic Fatigue is not an illness for most of the people, but FM couldn't be ignored... What about: I think you should discuss this out with my doctor or with my body which both seem to be convinced of it?
You cannot take any painkillers with ME or no painkillers which would help?
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Posted: Fri Jun 15, 2007 3:38 pm
Pity is punishable by DEATH....or cake, possibly.
So: Cake or death?
Ah..I see. Sarcasm his arse off. Clever. ^^
(You have made me so happy encouraging me..)
rolleyes
I'm sorry I was so mad at it, it's just he's supposed to be a friend. And he (gently) kicked my walking stick - he may as well of booted me in the leg.)
ME makes my body oversensitive (Me is probably the condition I dislike most of the two), so the drugs that would work in theory just make the feeling worse through side effects. SO every medicine has to be taken only when the resultant feeling is better than the present feeling. But! I've had my first acupuncture session today, which, while I've still had pain all day, helped amazingly. ^^ It also means this might help and the hell will be over and I can break this boy's face.
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Posted: Tue Jul 03, 2007 4:21 pm
*hugs* I'd break his face for you... but not sure where he lives.
If you were healthy and then fall sick with something that people don't understand, then they will proceed to tell you that you're not ill and that it's all in your mind. They do it out of ignorance. And sometimes they don't want to admit their ignorance or face the fact that they have hurt you, and so will try to belittle your situation.
Or sometimes they're just assholes to begin with and need to be kicked in the shins.
Either way, you are an amazing person for staying positive and alive despite your great suffering. You are an inspiration, and I hope that you find relief from the pain soon.
Yes, I've said this to you before, but it's nice to be reminded, yes? So here it is: God is with you throughout this suffering - you are not alone.
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